Billy Caldwell, whose intractable epilepsy means he cannot get help through medication or diet, began treatment with cannabis oil in the US, where medical marijuana is legal, in 2016.
His prescription was transferred to his local GP, Brendan O’Hare, in Northern Ireland, and Billy became the first person to receive a prescription for medical marijuana in the UK. The medicine, which contains a compound found in cannabis plants called CBD, does not contain any synthetics or chemicals. The company, Billy’s Bud, was named after Billy in July.
His mother, Charlotte Caldwell, said Billy used to suffer up to 100 seizures per day, has now not had a single seizure for 300 days.
The family is also holding a Billy’s Bud festival on 9 September in Castlederg, County Tyrone, to celebrate the support they received for their “Keep Billy Alive” campaign.
“Following extensive treatment with CBD oil, Billy is now more than 300 days seizure free,” Ms Caldwell told Donegal Now.
“To celebrate the phenomenal change for the better in Billy’s health, we have decided to hold a small celebration in recognition of all those people that have helped us”Keep Billy Alive”.